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Waldenstroms Macroglobulinaemia (WM) and Bing Neel Syndrome (BNS) Community Support
This is a UK group for patients, family and carers of people with Waldenstrom's macroglobulinaemia (WM). It is a place to encourage peer-to-peer support and foster a sense of community among those dealing with this rare disease. A separate subgroup for patients, family and carers of people affected by Bing Neel syndrome (BNS), can also be accessed here: https://wmuk.groups.io/g/BNS Our groups are not a medical or diagnostic resource; neither the members nor the admins are medically qualified. Please talk to your healthcare professional if you have detailed questions about your treatment. The charity WMUK cannot be held responsible for anything you share here. Any opinions expressed in this forum by any accounts other than the WMUK account name are those of the individual poster and do not reflect the views of WMUK. We expect members to be kind and respectful to each other. Please do not use this group to name and shame or share what you see here outside the group. We do our best to ensure anyone joining is genuine but we cannot vet members. We cannot be responsible for any contact you may have with each other away from the group. If you have any concerns with anything you see here, please contact the admins. Most importantly this group is what members make it, so welcome, happy posting and enjoy!
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  • Bing Neel Syndrome (BNS) Community Support
    This is a UK based subgroup (within the WMUK Groups.io forum) for patients, family and carers of people with Bing Neel syndrome (BNS). Bing Neel syndrome (BNS) is a rare complication of Waldenstrom's macroglobulinaemia (WM). The exact incidence is unknown, but it likely affects less than 10% of patients with WM. If you're looking for further information about BNS, please visit the WMUK website here: https://bit.ly/34EUtGz The Bing Neel syndrome group is a place to encourage peer-to-peer support and foster a sense of community among those dealing with this rare disease.. It is not a medical or diagnostic resource; neither the members nor the admins are medically qualified. Please talk to your healthcare professional if you have detailed questions about your treatment. The charity WMUK cannot be held responsible for anything you share here. Any opinions expressed in this forum by any accounts other than the WMUK account name are those of the individual poster and do not reflect the views of WMUK. We expect members to be kind and respectful to each other. Please do not use this group to name and shame or share what you see here outside the group. We do our best to ensure anyone joining is genuine but we cannot vet members. We cannot be responsible for any contact you may have with each other away from the group. If you have any concerns with anything you see here, please contact the admins. Most importantly this group is what members make it, so welcome, happy posting and enjoy!
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